ryan4leukaemia
My Leukaemia Story (Preview)
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'MEET THE CHALLENGE, BEAT THE CHALLENGE'

 

DIAGNOSED:22nd August 2006....Treatment on-going

Feb 2007: Had Unrelated Allogeneic Bone Marrow Transplant

The aim of this site is to provide information, guidance and advice to anyone in need of help. If you or anyone you know is going through Leukaemia or has been through it, this site is for you. After suffering with a very rare form of Acute Myeloid Leukaemia with PH+(Philadelphia Chromosome) for the last 18 months, I wanted to make advice available and discuss my personal experience of having the illness. I dont feel enough people are aware of the condition and this site will aim to provide information about Leukaemia aswell as documenting my experiences during a tough 18 months for my family and I. This is only a small preview of the book i am trying to write about the whole ordeal to date. Please inform me if you would be interested in the finished book as all proceeds will go to Leukaemia Charities. UK Leukaemia patients need YOUR help, please donate your bone marrow. Visit blood.co.uk or anthonynolan.org.uk to register, please..we need your help!

22nd Aug 2006- Diagnosed with Acute Myeloid Leukaemia(AML)

Aug 2006- Hickman Line Installed

Aug 2006- 1st Chemotherapy session

Sep 2006- Lost all hair

Sept 2006- Contracted Ear Infection

Sept 2006- Contracted Chest Infection

Oct 2006- 2nd Chemotherapy session

Oct 2006- Diagnosed with AML Ph+ (Philadelphia Positive)

Nov 2006- Contracted Chest infection

Nov 2006- Contracted Flu

Nov 2006- 3rd Chemotherapy session

Nov 2006- Contracted Fungal infection

Dec 2006- Contracted Pneumonia #1

Jan 2007- Received Campath & Conditioning Regimen

Jan 2007- Admitted for Total Body Irradiation(TBI)

2nd Feb 2007- Had Unrelated Allogeneic Bone Marrow Transplant(BMT)

Mar 2007- Contracted Chest Infection

Mar 2007- Contracted Fungal Infection

Mar 2007- Contracted lung infection

Apr 2007- Contracted ear and throat infection

April 2007- Contracted Graft versus Host disease(GVHD)

May 2007- Contracted Pneumocystis Pneumonia (PCP)

June 2007- Contracted Chest Infection

June 2007- Recieved Pentamidine

July 2007- Contracted Pneumonia #3

July 2007- Weakness on lower left lung

Aug 2007- Contracted Viral Infection

Sept 2007- Contracted skin rash and disorder

Oct2007- Recieved Pentamidine

Nov 2007- Contracted Throat Infection

Nov 2007- Recieved Pentamidine

Dec 2007- Contracted Shingles

Dec2007- IV Aciclovir & Tazocin

Dec 2007- Recieved Pentamidine

Jan 2008- Contracted Ear Infection

Jan 2008- Lost all Hair again

Jan 2008- Recieved Pentamidine

1st Feb 2008- Diagnosed again with Graft versus Host Disease (GVHD)

Feb 2008- Recieved Pentamidine

Feb 2008- Re-Prescribed Cyclosporin,Aciclovir,Penicillin,Fluconazole

Feb 2008- Contracted Ear Infection, prescribed Amoxacillin

Mar 2008- Recieved Pentamidine

Apr 2008- Recieved Pentamidine

Apr 2008- Prescribed Budesonide for GVHD

There will also be information about Charity events and ways of donating money to Leukaemia Charities. Please feel free to sign the Guestbook and raise any issues using the Forum page.